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American heart association
The
American Heart Association provides material on congenital heart
defects and has two endowments listed below.
www.americanheart.org
Whether you are looking for
definitions of medical terms, hospitals caring for people with
CHDs, other people with whom you can network and share
experiences, links to support groups, articles regarding CHDs, or
resources for the CHD community, you have come to the right place!
www.congenitalheartdefects.com March of dimes The March of dimes provides
information and much more on all birth defects including
congenital heart defects.
Zachary
Brooks CHD Endowment
The
Zachary Brooks CHD Endowment is a 501 C (3) tax exempt charitable
organization. We are all volunteers working to raise
awareness and funding for Congenital Heart Defects, therefore,
100% of all donations contributed to the Zachary Brooks CHD
Endowment go to CHD Research. No over head costs or
administration costs are ever taken out!
www.zbchde.org
The Legacy
of Life is an American Heart Association campaign to raise $1
million for congenital heart defect research. When we meet our
goal, these funds will be invested and the Legacy of Life endowment
will be created. This endowment will provide a perpetual
funding source for congenital heart defect research – the most
common birth defect and the leading cause of death from birth
defects during the first year of life. Online
Support and Information
We
are a support group for parents, grandparents and siblings of
children born with Congenital Heart Disease. We have a
mission to not only provide support
to
those touched by CHD, but to do what we can to spread awareness of
Congenital Heart Disease and the need for research. We do this in
many ways, by contacting the local press, by participating in
CHD Awareness events and by working with our United Heart's
Partners. If you are looking for information and answers on
Congenital Heart Defects, we suggest that you visit the Congenital
Heart Defects website sponsored by Baby's Heart Press. It
is the most comprehensive website on the subject of Congenital
Heart Disease. If you are looking for support or to speak
with other caregivers of children with CHD and learn more about
becoming an advocate for our children, feel free to join our
group. If you have any questions or would like
direction in any way, feel free to email
us.
Family Matching and Books related to CHD's
Kids
With Heart NACHD- support, education, and resources for families
affected by congenital heart defects and children's acquired heart
disorders
Little Hearts Little Hearts, Inc. is a non-profit organization founded in January 1998. We provide support, resources, networking, and hope to families affected by congenital heart defects. Membership consists of families nationwide who have or are expecting a child with a congenital heart defect. Our mission is to offer
support and hope to families affected by congenital heart defects
through our support services and to promote public awareness for
this #1 birth defect. CHD Awareness Quilt Project
The
Congenital Heart Defect Awareness Quilt Project was created to
promote greater public awareness of Congenital Heart Defects (CHD),
while honoring the strength, courage, and commitment of all those
born with a CHD and their families.
Chaser Congenital heart anomalies, support, education and resources. The Massachusetts Heart Coalition
The Massachusetts Heart Coalition, Inc. was formed to eradicate Congenital Heart Defects (CHDs). We will accomplish our goal by:
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